4

Days

20+

Sessions

Sessions in

multiple

languages

National

audience

Attend from

anywhere

Lifetime achievement

awardees

Our Voices, Our Stories: Centering Children and Families in Systems of Care

FVLC2026 is the nation’s premier conference for family leaders and family engagement professionals to learn, network, and build their skills to support family engagement in systems of care. The conference will be offered as a 3D virtual experience, to support the attendance of families and partners from allover the country. Attendees include family leaders, youth with disabilities, public health professionals, health care providers, and patient experience professionals.

FVLC2026 will be offered in English and Spanish. Accessibility accommodations are available upon request, and conference materials may be made available in other languages besides English and Spanish.

Register

Registration will open in early January 2026. Sign up to receive emails about the conference.

Speak

Call for proposals is open. To submit a proposal, you will be prompted to register an account with Vfairs. Once you have registered, you may return and log in to edit drafts or submit additional proposals.

Registration Information

Registration will open in early January 2026

Conference Tickets

April 15th and 16th, 2026, 12pm ET – 6pm ET

Each day of the conference will include a keynote session and nine breakout session options. All sessions will have live Spanish interpretation. Conference attendees will have access to the platform for 6 months following the event to access session recordings and materials.

  • General Attendee - $350
  • Family Voices Affiliate Organization Attendee - $250
  • Other Family-led Organization Attendee - $300
    "Other Family-led Organization Attendee" includes Family-to-Family Health Information Centers (F2Fs) and other organizations for which more than half of their Board of Directors are a family member of a child with special health care needs.

Pre-conference Tickets

Regular price tickets for each pre-conference day are $125.

Available discounts:

  • Family Voices Affiliate Organization staff and Family-to-Family Health Information Center staff who are registered for the conference may register for either pre-conference day at no charge. In exchange, for those who take Serving on Groups Train-the-Trainer, we ask you to provide at least one training for families in the next year.
  • For other family-led organizations, there is a $50 discount per day.
About the pre-conference workshops:

April 13, 2026, 9am - 5pm ET, Leading by Convening Workshop
Leading by Convening is an interactive day-long training intended to equip government and non-profit agencies with the knowledge, skills, and tools to more effectively and meaningfully engage diverse youth and families and other stakeholders at all levels. Registration is limited to 30 participants in the English-language workshop and 30 participants in the Spanish-language workshop.

April 14, 2026, 9am – 5pm ET, Serving on Groups Train-the-Trainer Workshop
Serving on Groups Train-the-Trainer teaches participants to prepare and support families of CYSHCN to effectively participate at the systems level. It is targeted to family-led organizations who build the leadership of families. This interactive session will provide skills to train families who currently serve or want to serve on a decision-making group. Participants will learn about group processes, useful tools for groups, understanding data, and skills to maximize participation of family leaders in systems-level groups. Registration is limited to 30 participants in the English-language workshop and 30 participants in the Spanish-language workshop.

Agenda

Preconference: April 13-14, 2026, 9-5pm ET
Main Conference: April 15-16, 2026, 12-6pm ET

Detailed agenda will be available in 2026.

Thank you to our sponsors

Got Questions?

Find answers to common questions about FVLC2026.

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes. Family Voices leads a national network of family-led organizations that provide peer support and address state level policy issues to help families of children with special health care needs.

Our vision is that all children, youth, and families, especially those with special healthcare needs and disabilities, experience their best health and quality of life.

This conference is for all family leaders, health and public health professionals, and family engagement professionals who want to learn, network, and build their skills to support family engagement in systems of care. If you're passionate about family engagement and committed to helping families be heard in the systems that serve them, you’re welcome here.

Whether you're just getting started or have years of experience, you'll find tailored sessions to support your growth. The conference agenda will include over 20 workshops to help attendees reach and serve families, youth, and professionals to improve systems that serve families and operate an effective family-serving organization.

All conference materials will have Spanish translation, and all sessions will have live Spanish interpretation.

Other language accessibility accommodations are available upon request, and conference materials may be made available in other languages besides English and Spanish.

Registrants will receive access to our online conference platform in the weeks leading up to the conference. The online platform offers a 3D virtual experience, with 2D navigation available if preferred. You will also be able to navigate the schedule and attend sessions from the conference mobile app.

Yes, registration will open in early January 2026.

Yes, all sessions will be recorded, and registrants will have access to all recordings within the online platform and mobile app for 3 months.